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My Anaplastic Large-Cell Lymphoma Story
Or, This Is How I'm Going To Beat Cancer
Happy Easter!!! 
12th-Apr-2009 02:34 pm
He is Risen!  He is Risen, indeed!

I'm down to 1 mg of Prograf per day (from 4 mg when I was released), and that's the last of the immunosuppressants that I'm on.  Been running a low-grade fever for the last week or so (ever since they started cutting the drugs), but Dr. Fay thinks that's related to GVH, and is just something to manage rather than worry about.

We're in a race, at this point.  I'm receiving radiation for four different spots on my head, as well as my right shoulder.  I honestly think I just aggravated an old hockey injury in the shoulder, but it also lit up on my last PET/CT, so it doesn't hurt anything to have it zapped.  The tumors are growing in the spots that aren't being radiated (right ankle, shin, right side of my back), and I'm kinda using those to see what effect the graft is having.

Dr. Fay drew for my first chimerism test on Friday, which will tell us how much of my blood is still mine, and how much is donor.  He did say that he was very optimistic about the graft level on that, since my blood counts have pretty much completely recovered.  He said that he's had one person reject a graft in the last twenty-plus years, and that person's counts didn't recover for well over a month.  So, we'll keep fingers crossed, and should have the results on Wednesday (or so).

My team won their third championship (out of four opportunities) last weekend, and they had me join them for the pic.  Here it is:

13th-Apr-2009 08:35 pm (UTC)
Thanks for the update - and the picture. Looks like a great bunch of guys. We're praying for you.
Dave & Soona
13th-Apr-2009 11:26 pm (UTC)
Happy Easter Ben and family! You are always in our thoughts and prayers.
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