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My Anaplastic Large-Cell Lymphoma Story
Or, This Is How I'm Going To Beat Cancer
100% Donor-fied!!! 
21st-Apr-2009 08:09 pm
bald
Which is somewhat different than "fried donor"....  I've been around my mother too long. ;)

Chimerism test came back as fully-engrafted - my blood is 100% donor cells!   I finished my radiation treatments today, and the tumor on my face is completely gone.  The rest of the ones on my head are either gone, or significantly reduced, and the one on my back is shrinking (according to Dr. Fay and I; Ashli thinks it's the same size.  At least it's not growing!)

I have a whole-body rash, which Dr. Fay has diagnosed as GVHD.  Luckily, that's all that I have, and it's treatable.  He quadrupled my Prograf (to 1mg twice/day, as opposed to 1mg every other day), and added 20mg of prednisone to my daily regimen.  So far, so good - the rash is receding...

Not much new here - Mom went home Saturday, after being here about six weeks - we're going to be in the 70's-80's this weekend, and she said they're expecting more snow and rain in North Dakota.  I asked when she was planning on moving... ;)

Been back at work for the last week and a half.  It's been interesting, to say the least...  My buddy Bruce (who retired last fall) was back in town for lunch yesterday, and he told me that his son is working on retroviral treatments for T-Cell lymphomas, which is exactly the treatment paths that we need for my disease, and one that really doesn't exist at this point (most of the research has gone into B-cell, because that's where most of the cases are!).  Just one of those interesting connections...
Comments 
22nd-Apr-2009 03:52 am (UTC)
Yay! *Happy Snoopy Dance*
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